|
Time |
Presenters & Topics |
1:15-1:30
Room B
|
VCFS Research Update
Christine Finn, MD,
Raju Kucherlapati, PhD
Harvard Partners
|
1:35-2:00
Room B |
Planning for the Future for Special Needs Families
Al Temkin
Metlife
|
2:05-2:45
Concurrent Sessions: |
|
Session A
Room B |
Transition to Adulthood
Mary Aten
Director of Family Ties
Federation for Children With Special Needs |
Session B
Room 1 |
Education Resources for the Younger Child
Maureen Anderson and Lisa Jennings
Northeast VCFS Support Group |
2:50-3:15
Concurrent Sessions:
(Facilitated, parent
round-table discussions)
|
|
Session A
Room B |
Psychiatric Issues in VCFS
Facilitator - Christine Finn, MD
Harvard Partners
|
Session B
Room 1 |
Talking with your child about VCFS –
Facilitators - Maureen Anderson &
Dita Obler, MS
Northeast VCFS Support Group
Cardiovascular Genetics @ Children’s Hospital
|
3:20-4:00
Room B |
What Works in the Classroom for the VCFS Child
Update on research - Project 22q
Christina Sobin, PhD
Rockefeller University, NYNote: The Project 22q group has
posted the extensive brochure “Helping your child with executive function
deficits” on their website.
This brochure was given out at the meeting. It is broken down into the
following sections: Helping your child with executive function deficits
Introduction
Cognitive
Flexibility
Cognitive
Inhibition
Planning/Organizing
Problem Solving
Working Memory
|
4:00-5:00
Room B |
Social hour – Snacks and beverages
Meet the professionals and VCFS families
Visit information tables – handouts, etc
|
|
Sponsored by :
Cardiovascular Genetics Program, Children's Hospital
Harvard-Partners
|
