VCFS Meeting

3rd Annual NE VCFS Family
Support Group Meeting

November 12, 2005  

Time Topics Presenters
12:00 – 12:15
Farley 133		 Welcome and Opening remarks

Maureen Anderson & Lisa Jennings
(Coordinators NE Regional VCFS Family Support Group)
 

12:15 - 1:15
Farley 133

 VCFS Primer

Chris Finn, MD / Taryn Schiripo, MS
(Harvard Partners)
1:15 - 2:00
Farley 133

Learning Profiles of Children with VCFS

 

Karen Kiley-Braebeck, PhD (Children’s Evaluation Center)

 
2:00 - 2:45
Farley 133

Local Research opportunities:

 

Chris FinnMD

Taryn SchiripoMS

Christine Marshall, PhD
(all Harvard Partners)
2:45 – 3:00 Break and refreshments

 
3:00 - 3:45
Concurrent Sessions:
 
Concurrent session 1-   SERVICES		  
Gamble (Library) Patricia Schram, MD, FAAP
(Dev Med, CHB & Parent of child w/ special needs
Farley 133
  • Access to Services
 Lisa Jennings (VCFSEF board member,  Parent Advocate)
Chris Finn, MD (Harvard Partners)
Pavillion Dining Conf Rm
  • Let’s get organized

Roxanne Hoke-Chandler (Family Ties)
3:45 - 4:00

Break

  
4:00 - 4:45
Concurrent Sessions:		 Concurrent session 2-   SOCIAL ISSUES  
  Friendships/Peer Relationships Roundtable:  
Farley 133
  • For Teens Only group
 Karen Lindsay
Deep Chinappa, (Program Coordinator Partners For Youth With Disabilities)
Old Cafe (Front)
  • Parents of younger kids

 

 Lisa Jennings (Parent Coordinator)
Old Cafe (Back)
  • Parents of older kids and adults
 Maureen Anderson (Parent Coordinator)
Pavillion Dining Conf Rm Let’s get organized (Repeat)

Roxanne Hoke-Chandler (Family Ties)

 
Gamble (Library)

Family Communications Roundtable

Kate Ginnis, LICSW (CHB) &
Dita Obler, MS, CGC (CHB)
4:45 - 5:45 Social Hour – Snacks and Beverages
Meet the professionals and VCFS families
Visit information tables – handouts, etc
 

Sponsored by :
Cardiovascular Genetics Program, Children's Hospital
Harvard-Partners