|
Time |
Topics & Presenters |
| 11:00am |
Welcome and Opening remarks
Maureen Anderson & Lisa Jennings
Coordinators NE Regional VCFS Family Support Group
|
|
11:05am |
VCFS Primer
Chris Finn, MD / Taryn Schiripo, MS
Harvard Partners |
| 12:15pm |
Working Lunch: Local Research Opportunities
Chris Finn, MD, Taryn Schiripo, MS
Kucherlapati Lab, Harvard Partners
|
| |
Ages: Infancy -10+ Years Old |
Ages 8 - 18+ Years Old |
|
1:00 - 1:50pm |
Behavior and Social Development
in the Infant and School Age Child
Nancy Sullivan, PhD
Developmental Medicine
Children's Hospital
|
Developing a Social Tool Kit: Navigating
the Choppy Waters of Adolescence
Jennifer Gentile, Psy.
D.
Genetics/Metabolism
Children's Hospital
|
| 2:00 – 2:50 |
Educational Advocacy
Katherine Engel, MS, LISW
ASK Program
Children's HospitalDownload available:
Educational
Advocacy VCFS resource List (.pdf)
|
Learning Styles in VCFS
Rachel Currie-Rubin, M
Ed
Developmental Medicine
Children's Hospital |
3:00 - 3:50
|
Resources: The Federation for
Children with Special Needs
Mary Castro Summers
Director, Family Ties
Federation for Children with Special Needs |
Talking Practically About
Psychiatric Issues
Lou Baptista, MD
Child and Adolescent Psychiatry
Children's HospitalDownload available:
Local Referral List for Mental Health and/or Behavioral Intervention (.pdf)
|
| 4:00 - 4:50 pm |
Balancing Family Needs
Johanna Black, MS, and
Kirsten Fowler, MS
Child Life Specialists
Children's HospitalDownloads available:
Child Life
Patient Packet (.pdf)
Child Life
Sibling Packet (.pdf)
|
Achieving Medical and Social
Independence - Transition to Adulthood
Sue Fernandes, MHP,
PA-C
BACH Services
Children's Hospital |
|
4:50 -
5:15 |
Social Hour – Snacks and Beverages
Meet the professionals and VCFS families (plus Lisa Mannix, Child Advocacy
Office,
Children's Hospital)
Visit information tables – handouts, etc
|
|
Sponsored by :
Northeast Regional VCFS Support Group
Department of Cardiology, Children's Hospital Boston
Kucherlapati Lab,
Harvard-Partners
|
