22q11 Deletion Syndrome - Resources
Velo-Cardio-Facial Syndrome Educational Foundation
Robert J. Shprintzen, Ph.D., Executive Director
SUNY Health Science Center at Syracuse
Jacobsen Hall, room 707
750 East Adams Street
Syracuse, NY 13210
Telephone: 315-464-5321
Email: vcfsef@hscsyr.edu
Web: http://www.vcfsef.org
Faces of Sunshine: A handbook for Parents & Professionals
Published by:
The Clinical Genetics Center
The Children’s Hospital of Philadelphia
One Children’s Center
34th and Civic Center Blvd
Philadelphia, PA 19104
Telephone: 215-590-2920
Email: lunny@email.chop.edu
VCFS Information Guide - For Parents and Professionals (.pdf file)
(Go to Main page and choose Information from the Menu on left)
Published by:
Velo-Cardio Facial Syndrome Foundation of Australia
Contact: Mary Thorley
19 Eleanor Cresent
Rooty Hill, NSW 2766
Australia
Telephone: 02 9625 3710
Fax: 02 9864 6762
E-mail: vcfsfa@pnc.com.au
Web: http://www.vcfsfa.org.au/
Velocardiofacial syndrome: learning difficulties and intervention
(abstract)
Kok LL, Solman RT
Med Genet. 1995 Aug;32(8):612-8.
Web:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=7473652&dopt=Abstract
Chromosome 22 Central
Web:
http://www.nt.net/~a815/chr22.htm
The 22q11 Group
VCFS Information page
Web:
http://www.nt.net/~a815/chr22.htm
Information and Support for DiGeorge and Shprintzen Families
27859 Lassen Street
Castaic, CA 91384
Telephone: 805-294-3623
LDOnline
A website about learning disabilities for parents, teachers, and other
professionals
E-mail:
LDOnLine@weta.com
Web: http://ldonline.org/
Sibling Support Project
A national program dedicated to the interests of brothers and sisters of
people with special health and developmental needs.
Based at Children’s Hospital and Regional Medical Center in Seattle,
Washington
Email: mailto:dmeyer@chmc.org
Web: http://www.thearc.org/siblingsupport/
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
Telephone: 214-373-6300
800-242-8721
Web: http://www.americanheart.org
American Cleft Palate-Craniofacial Association
104 South Estes Drive, Suite 204
Chapel Hill, NC 27514
Telephone: 919-933-9044
800-24-CLEFT
Fax: 919-933-9604
Web: http://www.cleftpalate-craniofacial.org/
American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
Telephone: 301-897-5700
800-638-8255
Fax: 301-571-0457
Web: http://www.asha.org
NICHY: National Information Center for Children and Youth with
Disabilities
P.O. Box 1492
Washington, D.C. 20013-1492
Telephone: 1-800-695-0285
Web: http://www.nichcy.org/
SSI: Supplemental Security Income
Telephone: 1-800-772-1213 (M-F 7a.m.-7p.m.)
Web:
http://www.ssa.gov/notices/supplemental-security-income/
State and Local Government Website Listings
Web: http://www.statelocalgov.net/index.cfm
Last Update 10-02-03
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